MS Is A Selfish Disease
Its sad but its true, MS might have to be the most selfish disease ever.
I have found that this damn thing makes me feel so selfish.
It is relentless, it affects you in every way possible. I need more sleep than is natural, I have to rest frequently and cannot do something as easy as enjoying shopping without aids. I have many, many appointments that affect everyone and I have had to turn everyone’s life upside down just so I am safe.
It never even gives me a day off, or anyone else around me for that matter. Take today for example, it is Hubby’s Birthday, I won’t disclose his age, he might see it and cry. Anyway, I wanted today to be special for him, however he still had to do all his normal duties because at the moment, I am exhausted.
See… Selfish!
Also I now understand when people say they are ready for there next lot of tysabri, I always wondered what that comment meant, until now. It is every 28 days and I am nearing that, however due to Christmas, our group has to wait an extra 7 days!!!!! So really I have to wait 35 days.
Oh well, I will muddle on in my own selfish way, here is Hubby’ cake…
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Glad you still get Tysabri, you will soon stop being so tired. I did:) Happy birthday to your hubby:)
Mette recently posted.."Got you"
Thank you lovely. Still on it so far! xx