Take A Break!
So today, the family and me are featured in Take a Break magazine.
I got to tell my birth story and also bring some more awareness of how multiple sclerosis might affect someone.
Yesterday I realised how little people understand multiple sclerosis, with people saying outing my bully was unfair.
It both amazed and shocked me how, something so awful could have been turned around on me, what also surprised me was how different people who have multiple sclerosis acted to those who knew the bully.
People who understand this disease and have close family who suffer from it, felt my pain. One kind lady on twitter said her father would be beyond distraught if someone told him karma had put him in that wheelchair.
It made me think.
Take it to a different context, “Karma is a bitch, you lost two kids, how brilliant is that” or “Karma is a bitch, you got cancer, how brilliant is that”
Neither of the above would have been even remotely acceptable, they would both destroy and devastate the person on the end of that abuse. Regardless of what went on previous, no-one would have ever deserved that.
However because MS is not one of those truly understood things, I was wrong.
Also I was told to by some to get on with it and let it go. However if my child were being bullied, I would tell her to speak to someone, to not suffer in silence.
Because of my MS, I have all but lost the vision in my left eye, I am unable to make my baby daughters bottles of spoon feed her alone as I struggle to see her mouth when she moves. I cannot go out alone as I cannot see if a road is safe to cross. Heat makes my sight worse, it makes both my eyes all but black. I suffer from depression, one that will never go away, one that eats at me everyday. I have chronic fatigue, which makes daily tasks impossible. I have muscle weakness in my legs and my grip is starting to take a hit. My bowels do not understand my brain. The nerves in the back have been affected and I have to take anti epileptic meds three times a day. The treatment I have for my MS is fairly new and it can cause a dangerous brain infection known as PML. I have to factor the risks and the benefits and rely on not being the minority. These are only a few ways that multiple sclerosis affects me, I am one of the lucky ones.
All this together with an already emotional day, I was hurt.
Did I expect all to agree? Well yes and no, people never always agree, however this was such a horrendous thing to have been told. Nothing could justify it.
Now I will shut the door on the bully and hope I can bring more awareness of MS and carry on with my blog, writing has been a massive help to me. Plus I have met some amazing people.